Get Involved

"...Think Again. Think NP-C aims to reduce the time to diagnose by supporting healthcare professionals who are unfamiliar with NP-C to recognise the key signs and symptoms of the disease..."

Who can get involved in the Think Again. Think NP-C campaign?

Anyone can get involved to raise awareness of NP-C. This includes, but is not limited to, patient support groups, individual patients and their carers, healthcare professionals and the media.

A number of educational materials have been developed as part of this campaign to support healthcare professionals unfamiliar with NP-C to recognise the key signs and symptoms of the disease.

Who can get involved in the Think Again. Think NP-C campaign?

The following organisations and individuals have been involved in developing the campaign:

  • International Niemann-Pick Disease Alliance (INPDA)
    The campaign is led by the INPDA, which is an international alliance of non-profit Niemann-Pick Disease patient support organisations. Find out more about the INPDA
  • Advisory committee
    A multidisciplinary advisory committee of leading clinical experts in the field of NP-C provided advice and input into the content of the campaign to ensure it would resonate with healthcare professionals. Find out more about the advisory committee.

Think NP-C campaign materials

Here you will find Think Again. Think NP-C campaign materials so you can help us to raise awareness of Niemann-Pick type C disease (NP-C) amongst other healthcare professionals unfamiliar with NP-C. This will ultimately achieve earlier diagnosis for appropriate patients who will be referred on for diagnostic testing.

All campaign materials are available for you to download. Please Contact us if you need any of the materials in another language.

Specialty-specific posters

Speciality-specific posters have been developed to capture the attention of healthcare professionals and encourage them to Think Again. Think NP-C.

How to use the posters

You can help to raise awareness of NP-C and the campaign amongst other healthcare professionals by putting these posters up in your hospital department where your colleagues can see them.

Languages to download
Adult Neurologists/psychiatrists DE EN ES FR IT
Paediatricians DE EN ES FR IT
Paediatric hepatologists/neonatologists DE EN ES FR IT

 

How to use the logo

Help to raise awareness of NP-C and the campaign amongst healthcare professionals by adding the campaign logo and website address to your email signature.


Download the Campaign Logo

Think Again. Think NP-C banner

How to use the banner

Add the banner to your email signature as a quick and easy way to help us to raise awareness of NP-C and the Think Again. Think NP-C campaign

Download the Banner

Download the Banner

Think Again. Think NP-C infographic

The infographic aims to highlight key information about Niemann-Pick type C disease and the Think Again. Think NP-C campaign in an easy to understand and visually engaging way.

How to use the infographic

Share this infographic at meetings with other healthcare professionals or display as a poster in your hospital department where your colleagues can see it.

Download the Infographic

Think NP-C. Talk NP-C symptom cards

The Think NP-C. Talk NP-C symptom cards have been developed to explain how key symptoms of Niemann-Pick type C disease may be described by a patient or carer. The cards aim to help healthcare professionals understand and identify the key symptoms of NP-C through the provision of real-world patient and carer insights.

How to use the symptom cards

Share these symptom cards at meetings and events with healthcare professionals or place in your clinic or a hospital department where your colleagues will see them.

Download the Hepatosplenomegaly symptom card

Download the Dysarthria symptom card

Download the Ataxia symptom card

Download the Organ Psychosis symptom card

Download the Gelastic Cataplexy symptom card

Download the VSGP symptom card

References