Why is the Think Again Think NP-C campaign important?
Currently Niemann-Pick type C disease (NP-C) takes, on average, five years to diagnose.1 However, NP-C is treatable and so this means that patients live for five years without treatment or access to support. Think Again. Think NP-C is a campaign led by the International Niemann-Pick Disease Alliance (INPDA), an alliance of non-profit Niemann-Pick disease patient support organisations across the world.
The campaign aims to reduce the time to diagnosis by supporting healthcare professionals who are unfamiliar with NP-C to recognise the key signs and symptoms of the disease. This will help patients by speeding up diagnosis so patients can access treatment and support.2